All testing results and personal information from hereditary disorders programs acquired from individuals shall be considered a confidential medical record except for information for which consent to release is acquired. Individuals should be informed as to the scope of information requested to be released, the risks, benefits, and purposes for the release, and the identity of the person to whom the information will be released. Exceptions also for disclosures for research purposes and for data compilations that do not reference the identity of any individual.
This law exempts indices of birth, death and marriage records from disclosure under the Public Records Act. The State Registrar may release comprehensive birth, death, and nonconfidential marriage record indices to a government agency. The State Registrar is required to establish separate non-comprehensive indices for public release. Requesters of the indices must provide proof of identity and sign a form certifying that they will comply with prescribed usage guidelines.
All testing results and personal information generated from hereditary disorders programs shall be made available to an individual over 18 years of age, or to the individual's parent or guardian (subsection (i); all testing results and personal information from hereditary disorders programs obtained from any individual shall be confidential except for information that the individual/parent/guardian consents to be released, provided that the individual is fully informed of the scope of the information requested, the risks/benefits/purposes for the release, and the identity of to whom the inform